Rare Disease in Newcastle: Progress and Future Priorities

Hosted by Rare Disease: Newcastle University Centre of Research Excellence

28 February 2022
Newcastle Upon Tyne, United Kingdom


An online event to commemorate International Rare Disease Day

Goals of the Event:
– To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission to consolidate and increase rare disease expertise across Newcastle University and the Newcastle Upon Tyne Hospitals NHS Foundation Trust
– To explore the status quo for several key topics and propose actions to address current challenges
– To help build a broader engagement and outreach strategy, especially with patients and patient representatives.

The session will consist of brief presentations, panel discussions, and broader all-group discussions, focusing on two main topics:
– How can we leverage the current policy landscape (at local, regional, national and international levels) to bring benefits to patients?
– How do we use the lessons of the pandemic to ‘build back better’ for RD? What does the future of care and clinical research look like?

Event details

28 February 2022
Newcastle Upon Tyne, United Kingdom
Contact host