Description
Rare Disease Day on 28 February — and the events surrounding it — offer many exciting opportunities to raise awareness of rare diseases and reinvigorate progress for the rare disease patient communities. Events, meetings and discussions are held around the world to connect rare disease stakeholders and discuss how to support and advance treatment options together.
In this webinar, Worldwide Clinical Trials will lead a discussion panel of patient advocates active in the 2023 events surrounding Rare Disease Day. These advocates will be sharing their experiences from the past year, discussing the key discussion points that resonated with them at Rare Disease Day events this year, and their thoughts for what will come in 2023. They will also be providing their perspectives on how the clinical development industry can create better clinical trials, treatment options and more accessible and inclusive trials.
Leading up to the webinar, follow the hashtag #RareDiseaseDayWrapped on LinkedIn for live posts from the panelists, hosts and rare community about what is going on in the events surrounding Rare Disease Day.
Join the webinar for an insightful recap of what happened at Rare Disease Day events this year!