Description
Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome, Fragile X and Angelman syndrome parent organizations will be involved in all activities.
Rare disease meeting will be organized on 28th February at 3:30 pm in MediClubGeorgia. Doctors and families will be discussing the care of rare disease patients in Georgia, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient's perspective.Â
CDKL5 Georgia is planning open air event, offering CDKL5 families and their doctors interesting activities ending with painting their hands to show their support for those living with rare diseases.
Photo and video collages of patients and their families will be created to memorize rare disease events.
Â