Description
"Rare is sometimes painful, often unseen.
Always present.
Rare is brave, determined, finds joy in the little things"
In our event, we focus on shedding light on the stories of people with rare diseases and publishing them on the social media, in order to introduce them to them and their lives that they live. This is our first participation in the event, which came at a time of the Corona pandemic and the difficulty of following an educational path other than the Social Media, and we aspire to revive this day next year with more diverse events and larger geographical areas. To put the stories of rare diseases in front of everyone's eyes