Description
Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March.
The first film tells the story of 2-year old Arla, who was diagnosed with Infantile Pompe Disease in March 2020. The compelling and touching story, told by Arla’s parents, tells of the journey of a family dealing with Arla’s diagnosis during lockdown, and through to their struggle to maintain Arla’s lifesaving treatment.
To join the Zoom Premiere on Monday, the event details are posted on our Facebook page
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