Description
28 FEBRUARY
is Rare Disease Day
Children who live with a rare disease are like all other children. They love to play, listen to music, read, paint, play sports … they want to be friends!
That is why we should gather on Sunday, February 27, exactly at 5 to 12 at the scheduled location, Mogila of the undefeated in Prilep and give space to all children to be equal at least for a moment!
We will organize games in which everyone can get involved, we will draw, sing, play and make friends in the open air, which is the most important thing!
…….
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
This year, we are extending the invitation and inviting everyone to #lightupforrare at home at 7pm on 28 February 2022.
By sharing your colours and shining a beacon from your home, you will show your solidarity and help us to raise awareness for people living with a rare disease.
SHARE YOUR COLOURS
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