Event

25 Feb 2021
When:
Thu 25 February, 2021
Location
Manila
Nationwide
Philippines
2020 events in Philippines
ABOUT NATIONAL RARE DISEASE
23 Feb 2020 - 29 Feb 2020
CALL FOR PARTNERS | NATIONAL
17 Feb 2021 - 28 Feb 2021
In the Philippines, National
22 Feb 2021 - 28 Feb 2021 Nationwide
We are inviting everyone
25 Feb 2021 Nationwide
Philippines

Puhon: Progress and Perspectives in Caring for the Filipino Rare (Webinar) 25 February 2021 Manila, Nationwide, Philippines
Hosted by Philippine Society for Orphan Disorders Inc,

We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of National Rare Disease Week. #CareForRarePH #NRDW2021

With the theme "Puhon: Progress and Perspectives in Caring for the Filipino Rare", the webinar aims to provide an overview on what is a rare disease, local and international policies, and updates from DOH and PhilHealth. It will also present the experiences of a parent-advocate on living with a child with a rare disease.

Puhon is a Visayan word which means hopefully or God-willing.

The webinar is organized by

University of the Philippines Manila

Institute of Human Genetics - NIH

Department of Health (Philippines)

National Council on Disability Affairs (Government)

Philippine Society for Orphan Disorders Incorporated

Philippine Pediatric Society, Inc. (Section of Genetics)

Volunteer Youth Leaders for Health - Philippines

REGISTER AT

https://up-edu.zoom.us/webinar/register/WN_UaRWd5KrRRWdspzWstkuUA

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