Event

01 Feb 2020
When:
Sat 01 February, 2020
To :
Sat 29 February, 2020
Location
Boris Radosavljevikj - Goce 12
Bitola
North Macedonia
2020 events in North Macedonia
This year we have several
01 Feb 2020 - 29 Feb 2020 Bitola
The pourpose of this event
20 Feb 2020 - 29 Feb 2020 Prilep
I want to show part of
27 Feb 2020 Prilep
Со големо задоволство ве
29 Feb 2020 Skopje, Ohrid, Prilep
On February 1, we started
01 Feb 2021 - 28 Feb 2021 Ohrid
This year, an online event
22 Feb 2021 - 28 Feb 2021 Prilep
For RDD we planned an event
26 Feb 2021 Bitola
We had the opportunuty
26 Feb 2021 Bitola
We helped in organization
27 Feb 2021 Skopje
North Macedonia

Learning about rare diseases 01 February 2020 - 29 February 2020 Boris Radosavljevikj - Goce 12, Bitola, North Macedonia
+38970705446
Hosted by Association of citizens for rare diseases LIFE WITH CHALLENGES

This year we have several events.

On 1st of February we started with a campaign - Learning about rare diseases- 29 rare diagnoses translated into Macedonian and Albanian language - video, audio, and web preparations. This will continue even in March with other 30 rare diagnoses. 

In Bitola with Hepar Center, in cooperation with the municipality and 2 highs schools, we will have a public event in the center of the city for raising awareness. Until now we had a mother with a child who has ITP (Zivka Parket), who together with her class students painted t-shirts for RDD. 

In Ohrid there will be a big event on the 29th in the center of the city for raising awareness - painting hands, posting pictures, giving support to rare disease families - it is organized by Gordana Loleska, mother of a child with Alport Syndrome.

In Skopje, in cooperation with the Macedonian Medical Student Association, we are organizing a survey between the medical students on rare disease knowledge and raising awareness on the 28th of February at the University in Skopje. We will further (probably April) organize a press conference to present the results and have lectures on rare diseases presented by specialists doctors and patients and parents. 

In April- May we also plan a round table discussion on prenatal and neonatal screening on rare diseases with a focus on the importance of screening for PKU.

 

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