RD 2021 at our government
26 February 2021
Boris Radosavljevikj - Goce 12, Bitola
Hosted by Association of citizens for rare diseases LIFE WITH CHALLENGES
We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a talk about the challenges of people with rare diseases with the Minister of Health and the Prime Minister of North Macedonia.
We colored our hands in support of families with rare disease and concluded that we still have a lot to do in improvement for quality of life.