The aim of the meeting is to create an ever stronger bond between patients living with neurofibromatosis and their doctors and guide families who are looking for a reference center to rely on.
The live broadcast will be divided into two parts: health and inclusion.
In the first part we will talk about scientific research, surgical and pharmacological treatments and patient care / follow up together with the doctors of the Italian reference centers for neurofibromatosis.
In the second part, led by Prof. Laura Nota, Rector's Delegate on Inclusion and Disability, University of Padua, we will talk about social inclusion and in particular about inclusive language, a language that helps us to overcome stigmatizing and distorted images , first of all giving value to people.
Among the special guests:
- Dr. ssa Annette Bakker, president of the Children's Tumor Foundation and dr. Simone Manso, president of Children's Tumor Foundation Europe who will talk to us about the strategic role of the US foundation in supporting scientific research on neurofibromatosis
- Gabriella Nobile, president of the Mothers for the Skin Association
- Alessandra Boran, president of the Families and Skills Association
For more information on the event visit our website: IN THE PRISM OF RARITY
Thanks so much!!