28 February 2019
Hosted by Nacionalna organizacija za rijetke bolesti Crne Gore
We will present the film "Face of the Lafora" by Denis Bojic. the film is a story about the life and struggle of the Gajić family from Banja Luka, it all starts 10 years ago, when until healthy girls Tatjana and Mileni were diagnosed with rare, Laforin's disease. Mode details to come.
We also are iniving people suffering from a rare disease to come and record a short video of 1-2 minutes in which they will speak about living with their rare disease.