Annual presentation of the National Plan for Rare Diseases
28 February 2019
Forum Da Vinci, 6 Boulevard G.D. Charlotte, , Luxembourg
Hosted by National Committee for Rare Diseases
Following the launch of Luxembourg's first National Plan for Rare Diseases in 2018, the National Committee for Rare Diseases will hold its annual conference on the international Rare Disease Day, the 28th of February.
Through different presentations, the committee will provide an update of the progress that has been made so far, as well as the next steps and priorities. The main presentations will focus on the survey of rare diseases in Luxembourg, the development of a practical guide, the helpline service and the management of care.