RDD rare cancer (Japan)
01 February 2021 - 28 February 2021
Hosted by Japan Rare Cancer Patient Network
"Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021" Program
～Rare is Many! Let's learn about rare cancer
～February is Rare Cancer Awareness Month
1) 2021 2/7 (Sun) 1:00 pm - 2:00 pm
"Live Streaming" and then on-demand
Rare Cancer Awareness Month Opening Session / Explanation of the purpose / / Introduction of RCJ / Introduction of the program Talk
2) 2021 2/7 (Sun) - 28 (Sun)
On-demand and then YouTube release (1 year)
Video 1: "What is rare cancer? Dr. Akira Kawai (Director, Rare Cancer Center, National Cancer Center)
Video 2: Relay of the introduction of RCJ regular member organizations "Explanation of the disease and introduction of patient group activities".
Video 3) Cancer Photo Collaboration Rare Cancer Awareness Video: Each patient's story with photos, messages, and music.
Video 4: Introduction of the “raccoon”, a rare cancer network community that opened in December 2020.
Video 5) Lecture + patient roundtable discussion about genomic medicine
3) 2021 2/28 (Sun) 1:00 pm - 2:00 pm Live Streaming "Life on Demand" Closing Panel Discussion
Introduction and discussion of the voices (patients and the general public) gathered during the period
During this period, we are looking for your opinions and wishes about rare cancers. About the opinions we received
On February 28, related medical professionals and RCJ board members will discuss your opinions at the closing panel discussion.