Share your story in Rare Disease Diary
28 January 2021
Hosted by Comitato I Malati Invisibili
Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live with heavy economic, social and psichological burdens.
Due to lack of sufficient sacientific and medical knowledge, poor communication between healthcare professionals, poor listening and attention to symptoms, many patients are not diagnosed and their disease remains undentified.
Be part of Rare Disease Day by sharing your story in Rare Disease Diary on Facebook. You can write about your story and also submit photos or a video testimonial.