29 February 2020 - 01 March 2020
Colosseo, Rome, Italy
Hosted by UNIAMO Federazione Malattie Rare
The monuments will be lighted up with the three RDD Logo colours
The beginning of February 2020, when Italian RD Community was already ready to celebrate the RDD with hundreds of events, brought in Italy the nCo V ( CoronaVirus) outbreak. This new and daily evolving situation have forced us to change our program and those of Patient Organisations and many events have been or are being cancelled. Undoubtedly priorities have changed and the citizens’ health and the vulnerability of people living with Rare Diseases come first.
Nonetheless, the community of rare patients does not give up and where possible, in line with national, regional and provincial directives, the planned events will take place. In addition, to illuminate these slightly less bright days especially for some of us, various monuments in several cities in Italy will light up with the colors of the RDD logo: One of the most important is Colosseum in Rome
Social media will be the unstoppable means by which the awareness campaign on Rare Diseases will spread to all regions and outside our borders. Thus we invite everyone, people with rare disease, their families and carers, friends, medical health workers, health professionals- to whom we convey our gratitude for what they are doing to counter this outbreak-, national and regional authorities as well as researchers to upload your photos, using the hashtags #RareDiseaseDay #GiornatadelleMalattieRare #Showyoursupport
Follow the updates on this page and on the UNIAMO FIMR website www.uniamo.org