Event

24 Feb 2018
When:
Sat 24 February, 2018
Location
Fabio Perinei Hospital
altamura, Bari
Italia
2018 events in Italy
image
CblC Onlus participates
16 Jan 2018 - 28 Feb 2018
image
Students of the class 1A
31 Jan 2018 Milano
image
Students of the class 1D
08 Feb 2018 Roma
Un workshop di due giorni
09 Feb 2018 - 10 Feb 2018 Roma
image
The little pupils of the
09 Feb 2018 Roma
image
For Mario's little friends
09 Feb 2018 - 13 Feb 2018 Pompei (NA)
image
Students of the class V
09 Feb 2018 Roma
La vita vista attraverso
10 Feb 2018 - 11 Feb 2018 Roma
Ore 10,00-13,00 Piazza
11 Feb 2018 Matera
Evento promosso dal'Associazione
11 Feb 2018 Spilamberto (MO)
Evento promosso dal'Associazione
11 Feb 2018 Spilamberto (MO)
image
Una serie di  eventi organizzati
15 Feb 2018 - 25 Mar 2018 BOLOGNA
Convegno Mani e Voci delle
17 Feb 2018 Potenza
Sensibilizzare alla Rarità:Alimentare
18 Feb 2018 Venosa (PZ)
image
Information, research and
22 Feb 2018 Bergamo
an event which brings together
23 Feb 2018 MILAN
image
2^ Edizione del Premio
23 Feb 2018 Venezia
image
The Hospital "Fabio Perinei"
24 Feb 2018 altamura, Bari
Ore: 10.00/18.00Referente
24 Feb 2018 L'Aquila
image
Doubl eventChess game whose
24 Feb 2018 Como
A Day to bring together
24 Feb 2018 Naples
image
Il Centro di Coordinamento
24 Feb 2018 Zugliano (UD)
image
Ridare vita alla vita attraverso
24 Feb 2018 Naples
image
Project DDD Onlus, a day
24 Feb 2018 Ranica (Bergamo)
image
Spettacolo per famiglie
25 Feb 2018 Genova
Eravamo fino a pochi anni
25 Feb 2018 Napoli
“COMUNICARE LA MALATTIE
25 Feb 2018 Potenza
image
Presentazioni ed accoglienza
25 Feb 2018 TELGATE (Bergamo)
AN EXCITING AFTERNOON OF 
25 Feb 2018 CORNATE D'ADDA (bg)...
World Rare Disease Day
25 Feb 2018 Roma
Ore 10,00-13,00 Corso UmbertoStand
25 Feb 2018 Bernalda (MT)
image
Convegno sulla ricerca
25 Feb 2018 Isola del Liri
image
Il convegno verterà sui
25 Feb 2018 Isola del Liri
image
Il Liceo Statale G.Comi
28 Feb 2018 TRICASE (LECCE)
image
"Mostra che ci sei, al
28 Feb 2018 - 01 Mar 2018 PARMA
Mercoledì 28 Febbraio in
28 Feb 2018 Roma
image
A rare disease film
28 Feb 2018 Fano
image
Il Coordinamento Provinciale
28 Feb 2018 NARDO'/TRICASE
image
Riflessioni a più voci
28 Feb 2018 VENAFRO, Isernia
image
On Wednesday 28th February,
28 Feb 2018 PERUGIA
image
Patients, associations,
28 Feb 2018 Torino
image
Twenty chefs from Ingruppo
28 Feb 2018 Bergamo e provincia,...
AIRM (http://www.mitoairm.it)
01 Mar 2018 Latiano
image
 Anche nel 2018 il tema
03 Mar 2018 - 04 Mar 2018 Cagliari
on March 4th we will organize
04 Mar 2018 S.Bellino (Ro)
image
walk aismac and flash
04 Mar 2018 CATANIA
Sabato 12 Maggio ore 18,00
12 May 2018 Pomarico (MT)
Italy

UPDATE RARE DISEASES IN HEMATOLOGY 24 February 2018 Fabio Perinei Hospital, altamura, Bari, Italia
+393888982266
Hosted by AMARAM ONLUS

The Hospital "Fabio Perinei" of Altamura will host on 24th February 2018, on the occasion of the XI World Rare Diseases Day, a meeting entitled "update rare diseases in hematology" organized by A. MA. R. A. M. The program of the day, entrusted to the scientific coordination of Prof. G. Specchia, dr. M. Pizzuti and the dott. V. Picerno, includes two plenary sessions, discussion of clinical cases and round table discussion between patients and doctors on topics of considerable scientific interest including thalassemia, hemophilia, thrombotic thrombocytopenic purpura, paroxysmal nocturnal hemoglobinuria, mastocytosis, Poems syndrome, disease of Gaucher and hemoglobinopathies. The event is accredited by the ECM with the recognition of 6 training credits for medical hematologists, general practitioners, internist doctors, transfusion medicine doctors, paediatricians, hospital and local pharmacists, biologists and nurses. The day offers the opportunity to gather voices and raise the attention of all the stakeholders, so that they can become key stakeholders so that the theme on rare diseases has constant attention from the scientific community and institutions, with the aim of overcoming the health, socio-health and educational inequalities of "rare patients".The Onlus sensitizes and promotes, through numerous events and activities, active policies and discussion on the theme of rare diseases and disability. In paraphrasing a phrase by French director Robert Bresson "Make visible what without you, perhaps could never be seen" our message is to have the strength to look beyond things, bypassing prejudice and stigma, learning to live from the experiences of others. 

Share this
Organised by
AMARAM ONLUS
Photos of the event