UPDATE RARE DISEASES IN HEMATOLOGY
24 February 2018
Fabio Perinei Hospital, altamura, Bari, Italia
Hosted by AMARAM ONLUS
The Hospital "Fabio Perinei" of Altamura will host on 24th February 2018, on the occasion of the XI World Rare Diseases Day, a meeting entitled "update rare diseases in hematology" organized by A. MA. R. A. M. The program of the day, entrusted to the scientific coordination of Prof. G. Specchia, dr. M. Pizzuti and the dott. V. Picerno, includes two plenary sessions, discussion of clinical cases and round table discussion between patients and doctors on topics of considerable scientific interest including thalassemia, hemophilia, thrombotic thrombocytopenic purpura, paroxysmal nocturnal hemoglobinuria, mastocytosis, Poems syndrome, disease of Gaucher and hemoglobinopathies. The event is accredited by the ECM with the recognition of 6 training credits for medical hematologists, general practitioners, internist doctors, transfusion medicine doctors, paediatricians, hospital and local pharmacists, biologists and nurses. The day offers the opportunity to gather voices and raise the attention of all the stakeholders, so that they can become key stakeholders so that the theme on rare diseases has constant attention from the scientific community and institutions, with the aim of overcoming the health, socio-health and educational inequalities of "rare patients".The Onlus sensitizes and promotes, through numerous events and activities, active policies and discussion on the theme of rare diseases and disability. In paraphrasing a phrase by French director Robert Bresson "Make visible what without you, perhaps could never be seen" our message is to have the strength to look beyond things, bypassing prejudice and stigma, learning to live from the experiences of others.