29 Feb 2020
Sat 29 February, 2020
Aras an Uachtaran, The Phoenix Park Dublin
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Reception for Families of Children with Rare Conditions @ Aras an Uactaran (The President's house) 29 February 2020 Aras an Uachtaran, The Phoenix Park Dublin, Dublin, Ireland
Hosted by MSD Action Foundation

Rare Disease Day event. The first of its kind in Ireland to properly recognise families that are are affected. With huge thanks to Michael D Higgins (President) for hosting the event after the request from Les Martin (father of 2 boys affected by MLD). Many thanks to Rare Ireland for helping to organise with Les Martin. We hope that this event will bring change and help to improve the landscape in some meaningful ways, in Ireland, for patients and families that are affected by rare conditions/ diseases

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