Launch of "An Easyguide to Rare Diseases in Ireland and Consensus for Action"
24 February 2020
Mansion House, Dublin 2, Dublin, Ireland
Hosted by Rare Diseases Ireland
Launch of a new and revised Rare Disease Guide – the first Easyguide to Rare Disease in Ireland was published in 2013. Under the management of the Rare Disease Taskforce the Guide is being refreshed with new and current stories of people living with a rare disease in Ireland in 2020 and with up to date statistics and information for the rare disease community and everyone in Ireland.
