Event

24 Feb 2020
When:
Mon 24 February, 2020
Location
Mansion House, Dublin 2
Dublin
Ireland
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Launch of "An Easyguide to Rare Diseases in Ireland and Consensus for Action" 24 February 2020 Mansion House, Dublin 2, Dublin, Ireland
Hosted by Rare Diseases Ireland

Launch of a new and revised Rare Disease Guide – the first Easyguide to Rare Disease in Ireland was published in 2013. Under the management of the Rare Disease Taskforce the Guide is being refreshed with new and current stories of people living with a rare disease in Ireland in 2020 and with up to date statistics and information for the rare disease community and everyone in Ireland. 

 

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