Rare Disease Research (RAinDRop) Partnership
28 February 2019 - 04 April 2019
Belfiled, Dublin, Ireland
Hosted by University College Dublin (UCD)
RAinDRop aims to establish a Research Partnership in Rare Diseases which will undertake a research prioritisation exercise and lay the foundation for a shared Research Action Plan on Rare Diseases for Ireland. A multi-phase high-quality engagement strategy will be carried out to meet the specific objective of this project. We are asking people living with Rare Diseases and their families, clinicians, health and social care professionals to identify the top 10 research questions currently under-researched, shared challenges in the rare disease community. This will help us Rare Disease Research Partnership (RAinDRop) to guide Rare Disease research to focus on the most urgent needs of people living with the condition.