Rare 2030 - the future for rare diseases
25 February 2021
Carmichael House, North Brunswick St, Ireland, Ireland
Hosted by Rare Diseases Ireland
As Rare 2030 reaches its conclusion we will hear about their policy recommendations for people living with a rare disease from Avril Daly, VP EURORDIS.
Rare 2030 is a foresight study led by EURORDIS-Rare Diseases Europe that gathered the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to improved policy and a better future for people living with a rare disease in Europe.