Description
On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from across the Institute and wider university heard about exciting new developments in research into XLH from Professor Stuart Ralston and Ryan Frew, who has XLH, described how his life has been transformed by a new treatment.Â
Watch the full recording of the webinar here:Â https://media.ed.ac.uk/media/IGMM+Rare+Disease+Day+event%2C+Shining+a+light+on+XLH+Rickets+-+a+rare+bone+disease+2021/1_46w4gg0q