Description
As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor to invite you to attend the Global Workshop on Access to Rare Disease Diagnosis and Treatment, on 19:00-22:30 Beijing Time, 28th February 2023.
During the event, we will have panelists from the industry, patient group, and advocacy group to explore current issues in patient access to rare disease treatment, and solutions to them from different regions. Several session will have a Q&A panel for listeners to communicate with our experts. For the detailed agenda of our workshop, please see another file.