Rare Disease Symposium and Research Meeting
27 February 2019 - 28 February 2019
F393/4, Otswe, Accra, Accra, Ghana
Hosted by Rare Disease Ghana Initiative
Ghana joined the world in the Rare Disease Day campaign for the first time in 2018 organised by Rare Disease Ghana Initiative. The 2019 campaign marks the 2nd time the event will be hosted in Ghana . The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. Last year, the event which had the theme as "Research" was hosted in collaboration with the Infant School of Ghana International School. The pupils showed their support by painting their face and hands after which the pupils, the staff and the Rare Disease Ghana Initiative team took a drone captured image of love to show our commitment and support to more than 350 million people living with rare diseases around the world. Prior to the day, a research meeting was held at the Department of Psychiatry of Korle-Bu Teaching Hospital where the attention of a team of researchers were drawn to the need to consider research on rare diseases. In addition to these, a social media campaign was launched to support the day. This year with a theme as ‘Bridging health and social care’ Rare Disease Ghana Initiative plans to organise the first symposium and research meeting on rare and congenital diseases. This meeting seeks to engage patients, caregivers, government, academic and civil society as we discuss ways to bridge the gap in access to healthcare and social services for persons affected by rare and congenital diseases in Ghana.
follow this link to read more about the first Rare Disease Day event in Ghana: https://www.rarediseaseghana.org/ghana-joins-the-world-to-celebrate-rare-disease-day-for-the-first-time/