Event

11 Feb 2021
When:
Thu 11 February, 2021
To :
Sat 06 March, 2021
Location

Germany
2020 events in Germany
3. Praxiswerkstatt  "Vernetzung
21 Feb 2020 Hotel Radisson Blu...
Around four million people
21 Feb 2020 - 22 Feb 2020 Städtisches Klinikum...
21.02.: Vorstellung des
21 Feb 2020 - 22 Feb 2020 Großer Hörsaal des...
Ärztliche Fortbildung zu
22 Feb 2020 Institut für Medizinische...
The date for the presentation
27 Feb 2020 KARL STORZ Besucher-...
Symposium on Rare Disease
27 Feb 2020 - 28 Feb 2020 KARL STORZ Besucher-...
Tag der Seltenen Erkrankungen
28 Feb 2020 Haus der Jugend
Informationsveranstaltung
28 Feb 2020 Uniklinikum Leipzig,...
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Further information will
28 Feb 2020 55116 Mainz
Event with numerous self-help
29 Feb 2020 Jahnplatz
Self-help day organized
29 Feb 2020 F. F. Runge Gymnasium
Symposium for students
29 Feb 2020 Vivantes Klinikum...
Jubiläumsveranstaltung
29 Feb 2020 Programmkino Ost
Vorstellung von über 15
29 Feb 2020 Einkaufszentrum...
14:00 Uhr Treffpunkt zum
29 Feb 2020 Forum im Rotes Kreuz...
1. Süddeutscher Tag der
29 Feb 2020 Haus der Begegnung
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This event raises awareness
03 Mar 2020 Willich
Fortbildungsveranstaltung
04 Mar 2020 ZSE im Universitätsklinikum...
Symposium on rare diseases
06 Mar 2020 Zentrum für Seltene...
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Living with PNHThe German
11 Feb 2021 - 06 Mar 2021
Liebe Patientinnen und
22 Feb 2021
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Tag der Seltenen Erkrankungen
26 Feb 2021 Online
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Dear colleagues, ladies
27 Feb 2021 Online Konferenz
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Sehr geehrte Damen und
27 Feb 2021 Ulm
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Each bone tells a story.
28 Feb 2021 Online
10 Jahre Kongenitaler Hyperinsulinismus
28 Feb 2021 Berlin
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New Center for Research
28 Feb 2021 München, Gauting
Germany

Living with PNH 11 February 2021 - 06 March 2021 , Germany
+4022157772276
Hosted by Stiftung lichterzellen

Living with PNH

The German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as part of her final exam for media designer image/sound on the topic "Different from the others". The main character looks healthy, but she suffers from a rare disease that can lead to serious complications and life-threatening conditions if left untreated. If diagnosed correctly, the disease is easily treatable, and yet living with it is not easy. This short film shows that impressively. We thank the producer and the very open and courageous main actors very much! 

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