Event

07 Feb 2021
When:
Sun 07 February, 2021
To :
Sun 28 February, 2021
Location
Tbilisi
2020 events in Georgia
We'd be happy to inform
29 Feb 2020 Tbilisi
Georgian Society for Inborn
29 Feb 2020 Tbilisi
Interesting activities
07 Feb 2021 - 28 Feb 2021 Tbilisi
The Georgian Foundation
21 Feb 2021 - 06 Mar 2021 Tbilisi
On February 28, 2021 the
28 Feb 2021 Tbilisi
TV Tower in Tbilisi will
28 Feb 2021 Tbilisi
Georgia

Rare disease day 2021 in Georgia 07 February 2021 - 28 February 2021 Tbilisi
Hosted by GSIEM

Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome, Fragile X and Angelman syndrome parent organizations will be involved in all activities.

Rare disease meeting will be organized on 28th February at 3:30 pm in MediClubGeorgia. Doctors and families will be discussing the care of rare disease patients in Georgia, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient's perspective. 

CDKL5 Georgia is planning open air event, offering CDKL5 families and their doctors interesting activities ending with painting their hands to show their support for those living with rare diseases.

Photo and video collages of patients and their families will be created to memorize rare disease events.

 

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Organised by
GSIEM
Photos of the event