Rare Disease Day 2020 in Georgia
29 February 2020
MediClubGeorgia (22a Tashkenti Str., Tbilisi, 0160), Tbilisi
Hosted by Georgian Society for Inborn Errors of Metabolism (GSIEM) and CDKL5 Georgia
Georgian Society for Inborn Errors of Metabolism (GSIEM) and CDKL5 Georgia is announcing the event dedicated to Rare Disease Day 2020, which will be held on February 29 at 2:00 p.m. in the MediClubGeorgia (22a Tashkenti Str., Tbilisi, 0160). The event is kindly supported by the MediClubGeorgia management team. Societies of PLWRD - Georgian organizations of Angelman, Dravet and Fragile X Syndrome are actively involved in the meeting organizational process. The special guest – Ana Mingorance who is a very valuable and welcome for us as well as for all Georgian patient’s community will kindly arrive for our event and join us. She is a neuroscientist, patient advocate and an independent consultant in genetic epilepsy syndromes and orphan drug development. The issues related with the latest advances in the management of the rare disorders, as well as the problems in the field of rare diseases in Georgia will be discussed.
We are looking forward to seeing all stakeholders, healthcare authorities, medical professionals and patients interested in the rare diseases at our event on February 29.