Description
GeneRare:
Getting to Know Genetic and Rare Diseases
Meetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible procreation: the steps towards the Next Generation.
Health education addressed to the adoption of healthy lifestyles are necessary tools for community-based primary prevention.
Youths together with parents and teachers can activate an educational process addressed to primary prevention and care issues.
The GeneRare project takes its name from the union of the words Genetics and Rare Diseases. It aims to improve knowledge and awareness on Rare Diseases, genomics and ethical issues.
Within the GeneRare Project, the technical staff of the Genetics Center of the “Casa Rosetta” Association, together with the Health Education teachers of the Liceo Scientifico "A.Volta", Caltanissetta, celebrate the Rare Disease Day.
They have included in the training and orientation programs for students: research on Rare Diseases, human genome and therapeutic approaches towards genetic and Rare Diseases, with emphasis on their ethical implications.
GOALS
Knowledge
to Know more about Rare and Genetic diseases;
to Understand the meaning of reproductive risk and factors (genetics, toxic and harmful agents, radiation, substance use, drugs, alcohol, etc...);
to Know the meaning of Genetic Counselling.
Education
to Live with a Rare Disease;
to Encourage personal responsibility towards procreation;
to Reflect on risk-taking behaviour and beliefs about reproductive life.
SCHEDULE
N. 8 CLASSES
25-student GROUP MEETINGS:
- 24th February, 2021
- 1st, 12th and 15th March, 2021
Find the event program here.