Event

20 Feb 2019
When:
Wed 20 February, 2019
Location

2019 events in Europe
The 8th edition of the
12 Feb 2019 Brussels, Belgium
The 3rd EURORDIS Multistakeholder
13 Feb 2019 - 14 Feb 2019 Brussels
Today, too many children
20 Feb 2019 New York City
The annual EURORDIS Rare
21 Feb 2019 New York City
Europe

Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease 20 February 2019
Hosted by Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease

The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease (“the Global Commission”) is a multidisciplinary group of experts formed by Takeda, Microsoft and EURORDIS-Rare Diseases Europe with the creativity, technological expertise and commitment required to accelerate time to diagnosis and make a major difference in the lives of millions of children and their families. The Global Commission will officially share its actionable roadmap and pilot projects in a series of three global launch events during February of 2019.

Live launch events will take place in New York, Brussels and Beijing during February 20th and 28th with an option to stream the New York event online. With a focus on technology-driven solutions, the Global Commission’s roadmap will capture the work that the Commission has completed since its formation early in 2018, and its recommendations to shorten time to diagnosis for children with rare diseases worldwide. 

For more information, please go to: https://www.globalrarediseasecommission.com/.

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