21 Feb 2019
Thu 21 February, 2019
United Nations Headquarters, New York
New York City
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Second High-Level Meeting of the NGO Committee for Rare Diseases 21 February 2019 United Nations Headquarters, New York, New York City
Hosted by NGO Committee for Rare Diseases

The annual EURORDIS Rare Disease Day policy event will take place at the United Nations this year in the form of the Second High-Level Meeting of the NGO Committee for Rare Diseases.

The NGO Committee for Rare Diseases was initiated by the Ågrenska Foundation and EURORDIS in 2016. To mark the occasion of Rare Disease Day 2019 the NGO Committee for Rare Diseases with the sponsorship of the Permanent Mission of Estonia to the United Nations, is organising its second high-level meeting at the United Nations.

The event aims to present a number of activities carried out through 2017 and 2018 within the human rights, health and sustainable development agendas of the United Nations system as well as present and discuss a call towards a General Assembly Resolution on rare diseases. It will take the form of an all-day conference bringing together around 100 participants – from the international NGO community, UN agencies and national governments, academic and research institutions as well as the private sector – interested in collaborating towards the advancement of rare diseases as a global public health priority.

It will be possible to follow the event live online via: http://webtv.un.org/live-now/watch/rare-disease-day-policy-event-keynote-addresses-session-2-session-3/5707157251001 from 9.45 EST/15.45 CET

Please email [email protected] with any questions

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