26 Feb 2021
Fri 26 February, 2021
To :
Sun 28 February, 2021
Bělohorská 19
Entire Country
Czech Republic
2020 events in Czech Republic
This event we organize
29 Feb 2020 Prague
We are very honoured that
01 Feb 2021 - 28 Feb 2021 the entire country
HAE Junior patient organisation joins
15 Feb 2021 - 28 Feb 2021
A special issue of the
26 Feb 2021 - 28 Feb 2021 Entire Country
This Round Table is currently
26 Feb 2021 Prague
On the 2021 RD Day a building
28 Feb 2021 Prague and other...
On the Rare Diseases Day
28 Feb 2021 - 31 Dec 2021 Brno
Czech Republic

Bulletin Special- holistic care for patients with RDs 26 February 2021 - 28 February 2021 Bělohorská 19, Entire Country, Czech Republic
Hosted by Rare Diseases Czech Republic

A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with rare diseases. This care involves a number of professions ranging from doctors, teachers, social workers to physiotherapists, speech therapists to palliative care experts.

This complex group of professions is needed to ensure better life quality for a person with RD.

This care needs to be concentrated around C of E for RD.

The goal is to leave no one behind and care for every person with a rare disease properly and well.

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