Complex and supportive care for rare diseases
20 February 2019
Prague, Czech Republic, Czech Parliament
Hosted by Rare Diseases Czech Republic
This year we focus on complex and supportive care for RD patients with the emphasis n paliative care, being an integral part of care for our patients. In our country, paliative care is only about end of life. But we know that for some rare diseases, this care starts right at the beginning after being told the diagnosis. The importance of incorporating such services which will support families is our main message of this seminar which will be held in the Czech Parliament under the auspices of two Parliamentary deputies.