The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote public policies for these conditions in the country.
In 2020, based on an initiative from FENPOF, together with other patients and caregivers organizations, plus the support of Deputies and Senators, the Chilean Government decreed the last day of February as the National Day of Education and Awareness of rare diseases in Chile.
Further, FENPOF is an active participant in a collaborative table between groups of patients, researchers, academia, health professionals, industry, and political leaders to develop legislation that embraces these conditions.
During February, FENPOF has held talks showing patients-clinicians-researchers perspectives, transmitted by zoom and through the official Facebook page to show the rare diseases' reality to the public opinion, motivating the collaborative work necessary for improving the quality of patients' life.
Visit us on our social networks to watch our recorded talks and help us spread them. Thank you!
Find the event program here.