Event

28 Feb 2019
When:
Thu 28 February, 2019
Location
18 Xuanwai Street Xicheng District, Beijing, Beijing Shi, China, 118305
Beijing
2019 events in China
A press conference and
28 Feb 2019 Beijing
China

Press Conference and Seminars 28 February 2019 18 Xuanwai Street Xicheng District, Beijing, Beijing Shi, China, 118305, Beijing
01083545711

A press conference and two seminars will take place on 28 February at JW Marriott Hotel Beijing Central on the following topics:

Press conference: 1. " Report on the findings and recommendations for the diagnosis of barriers to the diagnosis of children with rare diseases " 2. "China's rare disease drug accessibility report (2019)" 3. "National first rare disease list corresponding drug grooming report"

Seminar 1: Internet and new technology in the diagnosis and treatment of rare diseases

Seminar 2: China Orphan Drug Accessibility Seminar

2019年2月28日国际罕见病日中国宣传倡导活动,罕见病发展中心(CORD)将联合消除罕见病患儿诊断壁垒全球委员会(The Global Commission,简称“全球委员会”)、IQVIA 艾昆纬中国、CM公益以及各类罕见病患者组织、各大医院、各大药企在全国举办多种形式的宣传倡导活动,其中2月28日当天在北京举办多个研究报告的发布会和两场研讨会。

 

 

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