Event

24 Feb 2019
When:
Sun 24 February, 2019
To :
Sun 31 March, 2019
Location
Chile
Todas las regiones
Chile
2019 events in Chile
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FECHER iniciando la campaña
17 Feb 2019 - 28 Feb 2019
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The Chilean Federation
24 Feb 2019 - 31 Mar 2019 Todas las regiones
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FENPOF Chile (Federación
28 Feb 2019 - 03 Mar 2019 Santiago
Chile

Joyas Invaluables "Invaluable Jewels" 24 February 2019 - 31 March 2019 Chile, Todas las regiones, Chile
Hosted by Chilean Federation for Rare Diseases (FECHER)

The Chilean Federation for Rare Diseases (FECHER) with the support of the Jewelry Aurus launched in the framework of The Viña del Mar International Song Festival, the most important summer event in Chile, the campaign "Invaluable Jewels" to make visible the reality of the people who must pay for high-cost treatments. They created rings reminiscent of medicines like Ataluren or Cystagon, and were paraded through the red carpet where usually high-value jewels are found, highlighting the luxury that represents today for Chilean patients to access to these kinds of treatments. On the site www.joyasinvaluables.org, you will find the testimonies of patients and the values in Chilean pesos of some high-cost medicines. During the final stage of the Viña del Mar Festival, one of these rings will be given to the Festival Queen as an act alluding this issue.

In March, FECHER will continue visualizing the rare diseases through campaigns as a photo with the rare disease day’ frame #FECHERrarediseaseday. Also, FECHER will keep promoting, through the Chilean media, about the treatments as "invaluable jewels". Below you will find some Chilean media diffusion links:

https://www.biobiochile.cl/especial/vina/noticias/2019/02/26/no-solo-coronas-estos-son-los-especiales-premios-que-recibiran-el-rey-y-la-reina-de-vina.shtml.

https://www.lacuarta.com/espectaculos/noticia/aurus-campana-invaluable/340990/

 

 

 

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