Description
This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:
*Press Releases in Arabic and English on all Media channels.
*A documentary film about rare diseases patients will be shared in our social account.
*New generation doctors education towards rare disease move (Recognize the Syndrome) contest for medical students in Bahrain.
*Rare diseases support group will held online activities.
*“Care for Rare” a webinar for patients, families and medical students.
All events are dedicated to increase the awareness about rare diseases patients, their need for medical and social support, help and tolerance. Educational activities, films and contests are organized by volunteers AGU medical students and Aljawhara staff. A rare disease day informative materials about inheritance types and genetic testing will be posted in our social media.