17 Feb 2020
Mon 17 February, 2020
2, esplanade de l'Europe
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Optimising pathways of rare diseases patients thanks to cross-border cooperation in the Euregio Meuse-Rhine 17 February 2020 2, esplanade de l'Europe, Liège, Belgium
Hosted by EMRaDi

EMRaDi project closing event:

Optimising pathways of rare diseases patients thanks to cross-border cooperation in the Euregio Meuse-Rhine

17th February 2020
Liege, Palais des Congrès

After more than three years of cross-border cooperation, EMRaDi - the first INTERREG project on rare diseases in the EMR - comes to an end. Join us during this day to find out the achievements made and build with us the next projects to improve the quality of life of people living with a RD.

Full programme and registration


9:30 – Welcome coffee

10:00 – “Euregio Meuse Rhine Rare Diseases”: the EMRaDi project in short

10:20 – Field analysis of existing RD patient pathways in the EMR: 104 testimonies to uncover the day to day reality of RD patients and their relatives

11:10 – The situation of RDs in the EMR: Legal and financial provisions applicable to patients, data challenges for research and models of care

12:00 – Lunch

13:15 – Cooperation between the three university hospitals

13:50 – Patient perspective: recommendations from the Patient Sounding Board

14:20 – From EMRaDi 1.0 to EMRaDi 2.0

14:40 – Official signature of the declaration of intention

14:45 – Break

15:15 – EMRaDi 2.0: What is your opinion on the future projects to develop?

16:25 – Closing remark

16:25 – Drink

17:00 – End


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