Bahrain Rare Disease Day Awareness Campaign 2019
14 February 2019 - 28 February 2019
building 61, king abdulaziz avenue, block 328, Alsuqayya,, Manama, Bahrain
Hosted by Arabian Gulf University/Aljawhara center
This year campaign is continuing our activities intiated in 2013, and will focus on:
*Press realeses in all media channels
*A documentary about rare disease patients
*New generation education towards rare disease move. Group of different school students from Bahrain will visit Aljwaharc Center on Februry 14.
*Rare diseaes lectures in main universities in Bahrain
*Rare disease booth in Arabian Gulf University
*Open evening for patients and families on 27 Feb
*Rare disease booth at 2nd Pearl Pediatric Conference on 28th Feb-2nd March.
All events are dedicated to increase the awarness about the rare diseases patients, their need for medical and social support, help and tolerance. Educational activities, films, games and contests are organized by volunteers AGU medical students and Aljawhara Center staff. A rare disease day flyer and informative leaflets about inhertence and genetic testing will be distributed in all events venues.