Event

28 Feb 2018
When:
Wed 28 February, 2018
Location
Black ant cafe, main st, Kin Kin, qld
Kin Kin
Australia
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Get humerous for research Brunch 28 February 2018 Black ant cafe, main st, Kin Kin, qld, Kin Kin, Australia
+61467273592
Hosted by Danique Living wellness clinic

On the 28th of februrary Rare disease awarness day we are getting humerus for research. Come along and enjoy brunch with us. Dress up in your wackiest and funniest outfits bring a gold coin donation as big or as small as you like a big smile and help us raise funds for Rare disease awareness in Australia. I personally suffer with polystotic Fibrous Dysplasia and Mccune albrights syndrome. This condition effects my endocrine system as well as creates bone tumors and abnormalities in my bones through out my body this is a result of a mutation of the gnas gene.The odds of having my condition are 1/100000 to 1/1000000000 chance worldwide. Here in Australia there is not any support. I am one of the luckier ones with this condition their are children who have lost there eyesight and hearing as well as live with severe deformities because of this disease. I would like to raise awareness for this condition and many more rare diseases here in Australia so these children and others yet to come can recieve the emotional and medical support they need.

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Affiliated organisation
Rare Voices Australia Ltd. logo Rare Voices Australia Ltd.
Photos of the event