Event

26 Feb 2020
When:
Wed 26 February, 2020
Location
Parliament House - Parliament Dr, Canberra ACT 2600
Canberra
Australia
2020 events in Australia
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Rare Disease Day is on
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Rare Disease Day Public
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The Victoria Bridge will
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Adelaide Oval will light
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Rare Disease Day is an
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The Genetic Support Network
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Perth's Parliament House
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Perth's Yagan Square Digital
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Canberra Telstra Tower
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Come along to our Rare
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Join the Myasthenia Gravis
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Coffee and Chat, The Royal
29 Feb 2020 Queensland
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Join Myasthenia Gravis
29 Feb 2020 Queensland
Brisbane City Hall will
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Perth's Council House will
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Perth's Mandurah Bridge
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Sydney's Town Hall will
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RARE STAR DAYThe Steve
30 Mar 2020 Gold Coast, Queensland
Australia

National Strategic Action Plan for Rare Diseases Launch 26 February 2020 Parliament House - Parliament Dr, Canberra ACT 2600, Canberra, Australia
Hosted by Rare Voices Australia

National Strategic Action Plan for Rare Diseases Launch

A milestone event with Australia's Minister for Health, The Hon Greg Hunt MP

Ahead of Rare Disease Day, Rare Voices Australia (RVA) will unveil, for the first time, the National Strategic Action Plan for Rare Diseases (the Action Plan). The Action Plan holds a vision to deliver the best possible health and wellbeing outcomes for Australians living with a rare disease, by being person-centered, through equity of access, and sustainable systems and workforces.

The Action Plan shows us what we can achieve if we encourage collaboration and take meaningful action together.

The event is being hosted by Mr Trent Zimmerman MP and Dr Mike Freelander MP and will include an address from Minister Hunt and the CEO of RVA, Nicole Millis. 

Please note: this event is by invitation only.

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