Rare Disease Awareness Day
28 February 2018
St Georges Tce, Perth, Australia
Hosted by Young Lungs
Our event is to raise awareness for Rare Disease Day and to highlight Rare Lung Disease in kids and support the Young Lungs committee. We are a newly formed group under the Lung Foundation Australia and are raising awareness and funds to help all our kids with rare lung disease. Our aim is to connect families to limit the isolation felt having a rare disease, aswell as provide support to new treatment options for all our kids in Australia.