February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse app on that day. We will be sharing our stories, playing games, and having a blast all for a good cause. We will be raising funds for the Children’s Hospital of Philadelphia (CHOP) so they can continue doing great work with geneticists finding cures for rare diseases, many of which affect our herd members. We need your help to reach our goals! Please consider making a pledge to one of our teams or solo members to support them in the share-a-thon event. No donation is too small and anything helps!
Find the event program here.