In Venezuela the momentum of Rare Disease Day has been used since 2012 to launch a media campaign, to raise awareness amongst the general public and to draw the attention of policy makers. In 2016, there were events such as a symposium for Guillain-Barré syndrome where medical proffesionsals raised awareness for the rare disease.
Below you will find more information about what is happening in 2016Â for Rare Disease Day along with contact information of the organisations holding the event. You can also get involved! Let us know if you know of any events that are not listed here. Write to us at [email protected].
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