Rare Disease Day in Ukraine
Associations in Ukraine have participated in Rare Disease Day since 2008, using the occasion to launch publicity campaigns in major cities and hold conferences to progress Ukraine’s National Plan on rare diseases. They also aired a television show based on rare diseases on national television. In 2017, the third annual conference was held where patients were able to express their views on living with rare diseases and what can be done to further progress the rare disease cause.
For Rare Disease Day 2018, patient organisations celebrated with an online flashmob on Facebook, posting pictures with handprints to represent the Rare Disease Day logo. Psychological support was also a very important theme of Rare Disease Day 2018 in Ukraine.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].