NATIONAL ALLIANCE

Norwegian Federation of Organizations of Disabled People (FFO) logo
Norwegian Federation of Organizations of Disabled People (FFO)

Norway


Rare Disease Day in Norway


Rare Disease Day has been celebrated in Norway since 2007 when the following three organisations joined forces: Nasjonal kompetansetjeneste for sjeldne diagnoser (Norwegian Advisory Unit on Rare Diseases), Funksjonshemmedes fellesorganisasjon (The Norwegian Federation of Organisations of Disabled People) and Unge Funksjonshemmede (the he Norwegian Association of Youth with Disabilities).

Each year they raise public awareness of Rare Disease Day by hosting a conference for persons living with a rare disease, their families and health professionals.They also promote the event through gaining press coverage, securing interviews on national television and by running a social media campaign.

In 2020 Norway hosted nationwide lectures on rare diseases for hospital staff and an annual conference focusing on a new national strategy for Norway including access to treatment and living your life with a rare disease. An open meeting to discuss rare disease and partake in challenges and Q&As was held in Oslo city centre.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 



NATIONAL ALLIANCE

Norwegian Federation of Organizations of Disabled People (FFO) logo
Norwegian Federation of Organizations of Disabled People (FFO)

FRIENDS IN Norway

Events in Norway


Webinar: A rare view of the future - where do we want to go? image
Webinar: A rare view of the future - where do we want to go?

The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021. A rare...

28 Feb 2021 - Online

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Webinar image
Webinar

28 Feb 2021

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Good morning Norway - Tv-program image
Good morning Norway - Tv-program

25 Feb 2021

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Online information campaign about rare diseases image
Online information campaign about rare diseases

25 Feb 2021 - 27 Feb 2021

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Ligting up the Hospital image
Ligting up the Hospital

22 Feb 2021 - 28 Feb 2021 - Oslo university hospital

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