Rare Disease Day in Croatia
Croatia's first Rare Disease Day celebration was in 2009, when patient representatives paid a visit to the President. Since then, support has continued to grow each year, and the event is now backed by the First Lady of Croatia and is used to mobilise policy makers and the general public.
In 2016, the Croatian National Alliance for Rare Disease in collaboration with others attempted to break the Guinness World Record for the largest online photo album of hugs. The “Hug for Rare” campaign continued in 2017, gathering even more photos of hugs to show support for people with rare diseases and their families. Good wishes and messages were also collected on “trees of life” in cities all around Croatia and shared on social media. The final event of the 2017 campaign was a gala dinner, called the Rarely Good Dinner, where awards were handed out to those who have made a special contribution in the field of rare diseases.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].