Egypt first joined the Rare Disease Day celebrations in 2014. Previous highlights of the day include a parade in Hurghada with decorated cars and folklore entertainment in 2016 and a fundraising party for children living with a rare disease at a hospital in Cairo, with face-painting and balloons in 2017.
In 2019 talks were held aimed at all parts of society including those living with a rare disease and their families, patient support groups, and the medical community. A day of games and distribution of toys and gifts for patients and their families also took place.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].
Events
You are not alone even if one in a million
This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.… Continue reading You are not alone even if one in a million