Czech Republic

National Alliance
Czech Association for Rare Diseases (Ceska ascociace pro vzacna onemocneni)
Czech Association for Rare Diseases (Ceska ascociace pro vzacna onemocneni)
2018 events in Czech Republic
Czech Republic

Rare Disease Day in Czech Republic

Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases. Every year a Rare Disease Day bulletin is produced to illustrate what issues are a current priority with regards to rare diseases in Czech Republic.

In 2018 a museum hosted a Rare Disease Day event for the general public to hear the experiences of those with rare diseases and discuss research. A separate conference took place with the Czech Minister of Health. Czech Republic also encouraged widespread involvement in the #ShowYourRare campaign by sending out face paint to participants.

You can also get involved! Do you know of any events not listed here? Email us at [email protected].

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