Rare Disease Day in Czech Republic
Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases. Every year a Rare Disease Day bulletin is produced to illustrate what issues are a current priority with regards to rare diseases in Czech Republic.
In 2019 a museum hosted a Rare Disease Day event for the general public to hear the experiences of those with rare diseases and discuss research. A separate seminar was held in the Czech parliament on the importance of supportive and palliative care.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].