Rare Disease Day in Czech Republic
Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases. In 2016 there was a round table event at the House of Deputies in the Czech Parliament in Prague. This event intended to recap the ongoing terms of the Czech National Action Plan for rare diseases.
For Rare Disease Day 2017, the Czech Association for Rare Diseases (CAVO) published an information bulletin on the importance of research, with a special focus on rare diseases. Events were held across the country, including a conference and book launch in Prague and a panel discussion on research into rare diseases at a university in Brno.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].