NATIONAL ALLIANCE

Rare Diseases Czech Republic (Ceska ascociace pro vzacna onemocneni) logo
Rare Diseases Czech Republic (Ceska ascociace pro vzacna onemocneni)

Czech Republic


Rare Disease Day in Czech Republic


Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases. Every year a Rare Disease Day bulletin is produced to illustrate what issues are a current priority with regards to rare diseases in Czech Republic.

In 2020, Rare Diseases Czech Republic hosted a fun filled event in Prague to thank its members and supporters for their work and efforts to raise awareness and improve the quality of the lives of those living with rare diseases. 

You can also get involved! Do you know of any events not listed here? Email us at [email protected].



NATIONAL ALLIANCE

Rare Diseases Czech Republic (Ceska ascociace pro vzacna onemocneni) logo
Rare Diseases Czech Republic (Ceska ascociace pro vzacna onemocneni)

FRIENDS IN Czech Republic

Events in Czech Republic


Lighting of the buildings in RD Day colors image
Lighting of the buildings in RD Day colors

On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD Day, as well as a historic...

28 Feb 2021 - Prague and other cities of the country

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20 years of care for butterfly children image
20 years of care for butterfly children

On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech Republic. The centre...

28 Feb 2021 - 31 Dec 2021 - Brno

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Bulletin Special- holistic care for patients with RDs image
Bulletin Special- holistic care for patients with RDs

A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with rare diseases....

26 Feb 2021 - 28 Feb 2021 - Entire country

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Round table on the occasion of RD Day image
Round table on the occasion of RD Day

This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare...

26 Feb 2021 - Prague

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Rare Disease Day with HAE Junior image
Rare Disease Day with HAE Junior

HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition...

15 Feb 2021 - 28 Feb 2021

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RD Day 2021 is held under the auspices of the Czech Minister of Health image
RD Day 2021 is held under the auspices of the Czech Minister of Health

We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor Jan Blatný.https://www.facebook.com/CAVO.vzacna.onemocneni/photos/a.663005840418640/3899315890120936/

01 Feb 2021 - 28 Feb 2021 - The entire country

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