Swiss patient organisations have shown support for Rare Disease Day since 2010. Conferences have helped the Swiss Ministry of Health with its work on a National Strategy for Rare Diseases. Switzerland  has held fundraising events with live performances, dancing and jazz bands and a choir.

2020 celebrations in Switzerland included the ‘Our Voice for Rare’ fundraising performance, a Rare Exhibit at the United Nations in Geneva and a pre-conference Forum held by medical students addressing access to care and research for rare disease patients and their families. In addition Switzerland’s National Alliance, ProRaris, celebrated it’s 10 year in operation.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].  

National Alliances


National Alliance


OUR VOICE for RARE digital 2021

OUR VOICE for RARE digital 2021  This fundraising event aims at informing our population about rare diseases, and at raising money for… Continue reading OUR VOICE for RARE digital 2021

Projet musical solidaire – Le haka de MaRaVal

SOLIDARITY MUSICAL PROJECT – THE HAKA OF MARAVAL MaRaVal calls on Valais musicians and singers to show solidarity: we call… Continue reading Projet musical solidaire – Le haka de MaRaVal

Other Friends