Swiss patient organisations have shown support for Rare Disease Day since 2010. Conferences have helped the Swiss Ministry of Health with its work on a National Strategy for Rare Diseases. Switzerland has held fundraising events with live performances, dancing and jazz bands and a choir.
2020 celebrations in Switzerland included the ‘Our Voice for Rare’ fundraising performance, a Rare Exhibit at the United Nations in Geneva and a pre-conference Forum held by medical students addressing access to care and research for rare disease patients and their families. In addition Switzerland’s National Alliance, ProRaris, celebrated it’s 10 year in operation.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
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