Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2019 events
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tired of being tired
jamilla - United States
undiagnosed
Hello My name is Janice mother of Jamilla and I am writing on behalf of my daugher Jamilla. As a mother you always want to say its ok but very difficult to say that whne it no solution to her issues. She
AN ENCOUNTER & COPING UP
Rachit - India
Isaac syndrome
AN ENCOUNTER & COPING UP WITH A RARE CONDITION                                 by Rachit  This is written at a time when it’s as serious, an issue as Climate Change & Impact.Rare Health Conditions
How Advocacy for Hereditary
Jill - United States
Hereditary angioedema type 3
My name is Jill, I am 35 years old, and by the looks of me most of the time, I am a normal green haired, tattooed mega nerd from Northern California. I can often be found wearing bright, bold clothes,