Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2020 events
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Life with Trigeminal Neuralgia
Crystal - United States
Trigeminal neuralgia
My name is Crystal. I’m 23 years old, and was diagnosed with Trigeminal Neuralgia, in May of 2017. That was 4 days after my 21st birthday. I woke up and the right side of my face was numb. Immediately
Mi gran guerrero
Fabi - United States
Tetrasomy 15q26
El es mi hijo javier tiene 3 años y con un síndrome que no es tan común quisiera en algún momento encontrar una familia con el cual poder aprender más sobre este síndrome y así poder ayudar más a mi hijo
Gastro warrior
Stacey - United Kingdom
Gastroschisis
My son was diagnosed with gastroschisis at 17 weeks and 3 days I had to be induced at 33 weeks my son came at 33+1 the next day. My son had two surgeries when he was born in a span of a week he's now 9