Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2019 events
Tell your story!
Une vie différente avec
Fabienne - France
Hypoparathyroidism
J'ai 53 ans. En 2008, suite à une chirurgie pour cancer de la thyroïde, je me suis retrouvée en hypocalcémie sévère et crise de tétanie. Mes parathyroïdes ont été lésées et je devrai vivre sans parathormone.
Mmn
Brandi - United States
Multifocal motor neuropathy
I am a 46 year old woman, noticed about 15 years ago my left arm was getting weak, so I went to neurologist and found that I had a bone spur splitting my c5 c6 discs, so went for the surgery had a spinal
Life with Acrodermatitis
Zainabu - Sierra Leone
Acrodermatitis enteropathica
Hi. My name is Zainabu. I am the mother of a beautiful young girl named Amani. She was diagnosed with Acrodermatitis Enteropathica at 1 years old after an almost near death experience. She had sores and